Past Issues 2013-2015 Topic of the Week - NTSAD https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week?format=html Sun, 09 Aug 2015 06:37:01 -0400 en-GB hourly 1 Topic of the Week - August 7, 2015 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/311-topic-of-the-week-august-7-2015?format=html Topic of the Week - August 7, 2015 In this issue:

SWAG items for 5th Annual Day of Hope - T-shirts, bracelets, lunch totes, brochures

Prizes for top 3 fundraisers!

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/311-topic-of-the-week-august-7-2015?format=html In this issue:

SWAG items for 5th Annual Day of Hope - T-shirts, bracelets, lunch totes, brochures

Prizes for top 3 fundraisers!

]]> peg@pegdoyle.com (Peg Doyle) Past Issues 2013-2015 Topic of the Week Sun, 09 Aug 2015 06:37:01 -0400 Topic of the Week - July 13, 2015 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/307-topic-of-the-week-july-13-2015?format=html Topic of the Week - July 13, 2015 In this Issue:
Welcome to Our New Officers and Board Members

Brian Manning, President
Blyth Lord, Vice President
Alex Wright, Treasurer
Ruth Feldman, Secretary
Scott Hunger, Director
Sophia Pesotchinsky, Director

Our Thanks to Judith Tsipis

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/307-topic-of-the-week-july-13-2015?format=html In this Issue:
Welcome to Our New Officers and Board Members

Brian Manning, President
Blyth Lord, Vice President
Alex Wright, Treasurer
Ruth Feldman, Secretary
Scott Hunger, Director
Sophia Pesotchinsky, Director

Our Thanks to Judith Tsipis

]]> peg@pegdoyle.com (Peg Doyle) Past Issues 2013-2015 Topic of the Week Thu, 16 Jul 2015 04:35:33 -0400 Topic of the Week - June 19, 2015 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/304-topic-of-the-week-june-19-2015?format=html Topic of the Week - June 19, 2015 In this issue:

Taking the Tay Sachs Story to Capitol Hill
By Edward Goldstein, Russell and Brooks' Dad

The Advocacy Tool Belt

  • National Organization for Rare Disorders (NORD)
  • Rare Action Network (RAN)
  • NTSAD Toolkit for Meeting with Your Representatives
]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/304-topic-of-the-week-june-19-2015?format=html In this issue:

Taking the Tay Sachs Story to Capitol Hill
By Edward Goldstein, Russell and Brooks' Dad

The Advocacy Tool Belt

  • National Organization for Rare Disorders (NORD)
  • Rare Action Network (RAN)
  • NTSAD Toolkit for Meeting with Your Representatives
]]> peg@pegdoyle.com (Peg Doyle) Past Issues 2013-2015 Topic of the Week Tue, 23 Jun 2015 09:29:37 -0400 Topic of the Week - May 15, 2015 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/300-topic-of-the-week-may-15-2015?format=html Topic of the Week - May 15, 2015 Inside this Issue:

Genetics 101: Inheritance

Be Tested, Be Sure

Did You Know...
NTSAD administers and funds an International Quality Control Tay-Sachs Testing Program?

FAQS
When can I have my healthy children screened to see if they are carriers?
Where should I go to be screened?
I've heard about JScreen; what is it?
What do I do if my insurance won't cover the cost of carrier testing?

 

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/300-topic-of-the-week-may-15-2015?format=html Inside this Issue:

Genetics 101: Inheritance

Be Tested, Be Sure

Did You Know...
NTSAD administers and funds an International Quality Control Tay-Sachs Testing Program?

FAQS
When can I have my healthy children screened to see if they are carriers?
Where should I go to be screened?
I've heard about JScreen; what is it?
What do I do if my insurance won't cover the cost of carrier testing?

 

]]> peg@pegdoyle.com (Peg Doyle) Past Issues 2013-2015 Topic of the Week Fri, 15 May 2015 10:03:24 -0400 Topic of the Week - April 24, 2015 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/292-topic-of-the-week-april-24-2015?format=html Topic of the Week - April 24, 2015 A recap of an incredible week at the 2015 NTSAD Annual Conference.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/292-topic-of-the-week-april-24-2015?format=html A recap of an incredible week at the 2015 NTSAD Annual Conference.

]]> peg@pegdoyle.com (Peg Doyle) Past Issues 2013-2015 Topic of the Week Wed, 29 Apr 2015 13:00:09 -0400 Topic of the Week - December 5, 2014 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/269-topic-of-the-week-dec-5-2014?format=html Topic of the Week - December 5, 2014 Carrier Screening issue featuring Jewish Genetic Disease Consortium and JScreen information. Carrier Risk Chart included.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/269-topic-of-the-week-dec-5-2014?format=html Carrier Screening issue featuring Jewish Genetic Disease Consortium and JScreen information. Carrier Risk Chart included.

]]> Diana@ntsad.org (Diana) Past Issues 2013-2015 Topic of the Week Fri, 05 Dec 2014 14:52:00 -0500 Topic of the Week - November 21, 2014 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/270-topic-of-the-week-nov-21-2014?format=html Topic of the Week - November 21, 2014 Making Your Mark and Making a Difference - Advocacy announcements

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/270-topic-of-the-week-nov-21-2014?format=html Making Your Mark and Making a Difference - Advocacy announcements

]]> Diana@ntsad.org (Diana) Past Issues 2013-2015 Topic of the Week Fri, 21 Nov 2014 14:52:23 -0500 Topic of the Week - October 31, 2014 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/271-topic-of-the-week-oct-31-14?format=html Topic of the Week - October 31, 2014 Having a safe and fun Halloween with flu season precautions.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/271-topic-of-the-week-oct-31-14?format=html Having a safe and fun Halloween with flu season precautions.

]]> Diana@ntsad.org (Diana) Past Issues 2013-2015 Topic of the Week Fri, 31 Oct 2014 15:52:47 -0400 Topic of the Week - October 3, 2014 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/301-topic-of-the-week-october-3-2014?format=html Topic of the Week - October 3, 2014 Information about Late Onset Tay-Sachs and Late Onset Sandhoff diseases and highlights of two Late Onset members.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/301-topic-of-the-week-october-3-2014?format=html Information about Late Onset Tay-Sachs and Late Onset Sandhoff diseases and highlights of two Late Onset members.

]]> Diana@ntsad.org (Diana) Past Issues 2013-2015 Topic of the Week Fri, 03 Oct 2014 08:46:55 -0400 8 30 13 TOW Affordable CC Act https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/64-8-30-13-tow-affordablecc-act?format=html 8 30 13 TOW Affordable CC Act This article introduces the topic of the week, the patient protection and the affordable care act.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/64-8-30-13-tow-affordablecc-act?format=html This article introduces the topic of the week, the patient protection and the affordable care act.

]]> peg@pegdoyle.com (Peg Doyle) Past Issues 2013-2015 Topic of the Week Tue, 03 Jun 2014 11:09:56 -0400 TOW Research Review PDF version 2012 13 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/65-tow-research-review-pdf-version-2012-13?format=html TOW Research Review PDF version 2012 13 A NTSAD research overview, and the 2012-2013 highlights.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/65-tow-research-review-pdf-version-2012-13?format=html A NTSAD research overview, and the 2012-2013 highlights.

]]> (Anonymous) Past Issues 2013-2015 Topic of the Week Tue, 03 Jun 2014 11:09:56 -0400 8 16 13 TOW Sibling Scholarship https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/62-8-16-13-tow-sibling-scholarship?format=html 8 16 13 TOW Sibling Scholarship This article includes the topic of the week, sibling scholarships.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/62-8-16-13-tow-sibling-scholarship?format=html This article includes the topic of the week, sibling scholarships.

]]> (Anonymous) Past Issues 2013-2015 Topic of the Week Tue, 03 Jun 2014 11:09:55 -0400 8 23 13 TOW Research Review https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/63-8-23-13-tow-research-review?format=html 8 23 13 TOW Research Review This article introduces the topic of the week, developing a rapid screening method to identify potential drugs for metachromatic leukodystropy (a lysosomal disease related to Tay-Sachs).

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/63-8-23-13-tow-research-review?format=html This article introduces the topic of the week, developing a rapid screening method to identify potential drugs for metachromatic leukodystropy (a lysosomal disease related to Tay-Sachs).

]]> (Anonymous) Past Issues 2013-2015 Topic of the Week Tue, 03 Jun 2014 11:09:55 -0400 8 2 13 TOW In the News https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/60-8-2-13-tow-in-the-news?format=html 8 2 13 TOW In the News This article includes the topic of the week, families in the news.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/60-8-2-13-tow-in-the-news?format=html This article includes the topic of the week, families in the news.

]]> (Anonymous) Past Issues 2013-2015 Topic of the Week Tue, 03 Jun 2014 11:09:54 -0400 8 9 13 TOW International Families https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/61-8-9-13-tow-international-families?format=html 8 9 13 TOW International Families This article includes the topic of the week, international families and news.

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/61-8-9-13-tow-international-families?format=html This article includes the topic of the week, international families and news.

]]> (Anonymous) Past Issues 2013-2015 Topic of the Week Tue, 03 Jun 2014 11:09:54 -0400 Topic of the Week - May 23, 2014 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/272-topic-of-the-week-may-23-14?format=html Topic of the Week - May 23, 2014 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/272-topic-of-the-week-may-23-14?format=html Diana@ntsad.org (Diana) Past Issues 2013-2015 Topic of the Week Sat, 24 May 2014 16:01:00 -0400 Topic of the Week - May 9, 2014 https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/297-tow-5-9-2014?format=html Topic of the Week - May 9, 2014 Mother's Day Reflections

]]> https://stage.ntsad.org/index.php/resources/library/e-news/topic-of-the-week/297-tow-5-9-2014?format=html Mother's Day Reflections

]]> Diana@ntsad.org (Diana) Past Issues 2013-2015 Topic of the Week Fri, 09 May 2014 11:05:12 -0400