Coping with the day to day strain of life with Tay-Sachs, Sandhoff, GM-1, Canavan or any related disease can be overwhelming, confusing and exhausting. Just knowing that you are not alone can make it easier. Connect with other families! Visit Meet the Families to read stories.
Coping with the Diagnosis
From Our Families
document
Appreciate the Road Now
(124 KB)
by Flory Roman, CB 5-19-10
document
A Sacred Little Being
(130 KB)
by Sarah Alford, Lifeline Summer 2009
document
Journey of Acceptance
(127 KB)
by Sarah Alford, CB
document
Reliving the Diagnosis
(126 KB)
by Sarah Alford, CB 11-25-09
document
5th Anniversary of Diagnosis Day
(124 KB)
by Nicole Luce, CB 8-28-08
Other Resources
document
You Are Not Alone
(144 KB)
document
Welcome to Holland
(126 KB)
document
Welcome to Holland part 2
(125 KB)
Dad's Perspective
From Our Families
pdf
A Canavan Dad's Viewpoint
(374 KB)
by Ken Epstein
pdf
Be Careful What You Ask For
(1.91 MB)
by John ten Berge
document
Challenges of Caring for a Tay-Sachs Child While Working
(29 KB)
by Dan Pancamo
pdf
Dylan Has Changed My Life Forever
(3.07 MB)
by Brian Manning
pdf
My Daughter
(402 KB)
by Eric Fier
pdf
My Life with Conner
(1.31 MB)
by Rodey Watkins
Gottlieb Sibling Scholarship Recipient Essays
2012
pdf
Andrea Whiteman
(313 KB)
pdf
Anna Luetticke
(730 KB)
pdf
Daniel Margolis
(480 KB)
pdf
Jillian Hopkins
(425 KB)
2011
document
Andrea Lynne Whiteman
(15 KB)
document
Anna Luetticki
(13 KB)
pdf
Laura Hannah Stephenson
(444 KB)
pdf
Rachel Tinman
(666 KB)
2010
pdf
Allie Colaco
(382 KB)
pdf
Joshua Greenberg
(7 KB)
pdf
Rebecca Margolis
(296 KB)
2009
pdf
Joshua Greenberg
(393 KB)
pdf
Alec Rubenstein
(451 KB)
pdf
Karin Schroth
(560 KB)
2008
pdf
Joshua Greenberg
(657 KB)
pdf
Rebecca Margolis
(330 KB)
2007
pdf
Michael Callagy
(429 KB)
pdf
Jesse Fine-Gagne
(214 KB)
pdf
Joshua Greenberg
(813 KB)
pdf
Michael David Margolis
(304 KB)
2006
pdf
Jonah Eisenstock
(134 KB)
pdf
Alex Rhodes Sutton
(288 KB)
pdf
Lexa Sutton
(205 KB)
2005
Grandparents Cry Twice
once for their grandchild and once for their child
pdf
Caring for a Sandhoff Grandchild
(426 KB)
by Sharon Ashford
pdf
Reflections from a Grandmother
(4.09 MB)
by Kathy Cassista
document
Two Five Letter Words
(112 KB)
by Grandpa Rapp
Aunts & Uncles
pdf
What an Aunt Can Do
(353 KB)
by Deirdre Lord
document
Ronan's Sock
(28 KB)
by James Lynch